I was diagnosed with Meniere's disease 26 years ago. It can't be cured and doctors struggle with what causes it and with solutions to prevent it and even remedy it's severity. Meniere's disease affects the inner ear. Symptoms vary with individuals but most have a fullness feeling in the ear, tinnitus (constant ringing), clicking, dizziness, hearing loss, and drop attacks. I have gone through periods of each symptom. The worst has been the drop attacks. A drop attack is when the world turns upside down very fast. The sensation is one of falling quickly to the ground and that is exactly where you find yourself. Because these attacks happen so swiftly, it is often difficult for people with Meniere's to work in jobs where they are on ladders or high places with the chance of falling. If the attacks come regularly, it would be difficult and scary to drive a car. Luckily for most sufferers, the drop attacks are infrequent. I've had about six such attacks in the last 26 years, two while driving a car. Both times I have had my wife take the steering wheel from the passengers side until the major portion of the attack is gone. This usually only lasts several seconds, but the spinning sensation can last for hours and sometimes days.
My early struggles with this disease were difficult. It is a hard disease to diagnose and all other possible problems need to be ruled out. I had to go to specialists and had to rule out damage to the ear drum and a tumor. Once I was cleared of those two things, I spent years trying to maintain my hearing and remedy the fullness and dizziness. As is common with most sufferers, nothing has worked. I have had to learn to just live with it. I have had good years and bad years. Sometimes the symptoms will last for weeks and sometimes just a few days. I have been trying to understand what might trigger the episodes and attacks. Most of my struggles come with changes in barometric pressure from storms, stress, allergies, too much salt, and not enough rest.
The worst part for me has been the dizziness. I've been able live with the hearing loss, the feeling of fullness, and constant ringing. I'm not sure those who try to talk to me or whisper in my left ear appreciate having to repeat things, but I'm able to live with that part. The doctors tell me that with each attack, I will lose more hearing. Hearing test indicate that I have already lost my ability to hear certain higher tones. When I'm suffering an attack it is estimated that about 80 percent of my hearing in the left ear is gone. When not suffering the estimate is around 40 to 60 percent loss.
Why am I telling you all of this? The last few years I have been trying to stay in better shape. I have been running, riding a bike, hiking, and walking a lot more. Last year I felt really good. My theory is this: as we age and get sedentary, it can affect our bodies in adverse ways. I think the exercise has flushed my body of salt retention, provided better blood circulation, increased metabolism, and helped with oxygen and lung capacity. Last year as I pushed myself, I did not have Meniere's attacks or severe symptoms as bad as years past.
This past winter I didn't stay on my schedule like I wanted. I enjoyed the holidays and told myself that I could get with it when spring arrived. Well, spring has been taking its sweet time getting here and I find myself suffering from an episode of Meniere's. It will be interesting to see how it responds to the physical activity. Can I run it out of my system? Did the physical activity of the last two years really help with the symptoms? I'll be finding out.
The truth about Meniere's disease
ReplyDeletehttp://www.youtube.com/watch?v=Um1-xvFXNVA
did it?
Deletehello, thank you for your post. I was just diagnosed with MD and prior to it I was very active between playing basketball and soccer several times a week. I had an attack about two weeks ago, my third, and it was the most severe to date. Took me till yesterday to start feeling normal again and I tried to play basketball but kept having to stop and not for any conditioning issues. Things would start to spin a little bit. Did you experience this during exercise and does it get better?
ReplyDeleteFor me, exercise seems to work in keeping the symptoms under control. I still have periodic bouts of fullness in my ear, ringing, popping, and hearing loss. It seems my ear acts up on days when low pressure weather systems move into the area I live. The drop attacks and spinning have been pretty much under control. My thinking is that by exercising (which includes sweating and getting my heart rate up for 30 minutes each day), I am keeping good blood circulation, and sweating out salts. I think drinking more water also helps keep my body flushed of the salt retention. When I feel the fullness in my ear and the ringing, I will take an Advil to reduce the feeling of inflammation. It seems to work a little bit in relieving some of the symptoms. None of this is confirmed by a doctor. It is just what I have felt in my situation.
ReplyDeleteI just stumbled on your post after being symptom free since January 2015 and having had another drop attack today, falling backwards and hitting my head at work. This is so frustrating but I know where I went wrong.....I didn't rest after running a half marathon Saturday (where I PR'd and came in first in the Female Masters), I have not been watching my salt intake because I have been feeling so much better and we have a storm rolling in where it's supposed to rain all day tomorrow. From now on, I'm not driving before rain storms. I've already had one accident due to the drop attacks and my insurance company is cancelling my insurance.
ReplyDeleteIt is scary to have drop attack while driving. In the past I had a few. My wife was with me on a couple of them and was able to take the steering wheel until we got pulled over. The others I was luckily not in traffic and was able to get pulled over. As I stated for me, the exercise has really helped for the reasons noted. Thanks for stopping by and commenting.
ReplyDeleteDear Robert... thanks for sharing about MD. I was recently diagnosed and I'm still looking for information about the disease progression. Very happy to know that exercises are good for it, as I really like to run and play tennis. Are you taking Serc for MD? Cheers! Carol
ReplyDeleteCarol, thanks for stopping by and commenting. I'm not taking any medication. I've had some real struggles this year with fullness, ringing, and hearing loss. These episodes have lasted about two weeks at a time and then seem to clear up to where it is bearable. Winter is hard on me as I can't hike, bike, and run as much as I want. Plus, that is when most of the low pressure systems move in. I had one episode of very light dizziness this winter. Hopefully, with the warming weather in March, I will be able to get out and moving more. Good luck with the diagnosis. Keep up on the current information and let me know what works for you.
ReplyDeleteHi
ReplyDeleteI have had my second bout of MD which has lasted 3 months. Mostly not too severe, but which as caused me to not do any exercise for that time. Yesterday I walked briskly for 30 mins then rested for 30 and then walked another 30 mins. Last night I had a bout of vertigo, woke up with it this morning and at lunchtime still have it. I'm wondering if the exercise was too much out in the heat of a New Zealand summers day, but now am concerned whether I should continue or not. It's such a beastly disease.
Hi Gill,
DeleteIt is a beastly disease. When I was first diagnosed about 30 years ago I thought I would have to go on some type of disability. However, my bouts have been at least bearable and I've just learned to live with the tinnitus and fullness in the ear feeling. Luckily for me the spinning and dizziness went away after about 4 years. Every once in a while I will feel a slight sensation. I find if I eat a lot of salty foods, I can get flair ups. That's why I wondered if the running and drinking of water was helping to flush salts out.
I was just diagnosed w MD. I also have BBPM in my other ear. I ave had two drop attacks inside two days and as a retired person now drving a school bus..my days of drving maybe numbered . One of my attacks was while on the school bus and thankfully, no children were on bus as well as no traffic ( country rd) and was able to control vehicle to a quick and safe stop. I was just diagnosed a week after the incident and I too would work out 4-6 days a week and have since been afraid to work out. Tomm was asked to go to they gym. After a couple weeks of not going ..scared��
ReplyDeleteI have not had drop attacks for over 25 years, but I do get a slight sensation of dizziness and spinning once in a great while. So far I have only been having the loss of hearing, the tinnitus, and fullness felling. It is really bugs me, but I have learned to live with it. I'm still trying to run, seat, and drink more water, and avoid salt.
DeleteI have the exact opposite reaction. I love to work out, but after doing even the littlest exercise, I am completely disoriented, dizzy and ill feeling.
ReplyDeleteSorry to hear of your struggles. For some reason when I cut out salt, run and sweat, and drink lots of water, I feel better. I still get the ringing, the fullness, and deafness, but most of the spinning and dizziness is under control.
DeleteGreat to read this.I have been reporting my response to excercise to medics but they seem to think it is due to dehydration.First noticed that when I put my hearing aids back in after using the gym the switch on jingle was noticeably louder.I started regular gym at 40 after 15 +years of menieres.Since then my audiogram for my left ear has gone up and up and now at 53 I no longer use my hearing aids and feel better and fitter than ever.If I have symptoms I can't wait to get to the gym and work myself.I put all this down to turbo charging the blood and oxygen supply to my ears.After all that is what betahistine does to a lesser degree and is the only clinically proven beneficial medication.Anyway it works for me and I am glad after all this time to have stumbled across someone else who is finding the same benefit.Good luck mate.Off to the gym now.
ReplyDeleteMy mom has Meniere's Disease as well and I have seen the struggles she has went through over the years. I feel for you!
ReplyDeleteKnow this is an older post, but was encouraging to read. I'm 25 and should be getting my official confirmation this Wednesday. I've had horrible dizzy spells since I was a teenager and given so many wrong diagnoses that I almost gave up! Wasn't until I happened to notice my hearing loss (which has always gone in and out or felt full) was becoming more and more permanent so mentioned it that my doctor realized what I had! I've noticed as well that when I'm working out and in shape the dizziness is better, but at the same time I've also had to stop working out for periods in the past because I was considered too dangerous to work out while the drop phases were happening.
ReplyDeleteI'm actually a deaf/hard of hearing teacher and use fluent sign language so like you said, I'm ok with losing my hearing. Its the dizziness that gets me. Get spells bad when I'm at the grocery store here lately and I don't know why, but sometimes I have to squat down for awhile til it passes. Frustrating.
It had been 8+ years since a bad episode. I rode my bike 11,000 miles last year and after a big race in June I took some time off. Less than a month of rest and I woke up with 6 straight days of vertigo that put me in ER. The drop attacks, the spinning, everything I looked at was moving across my sight. I was sensitive to light, I had headaches, I couldn't keep water down. After a week of nothing and being so happy it had passed, the night episodes happened. The first one was so violent. I was so scared. Then they came in the night for another 6 nights. I was 5 days clear and last night upon waking I had some small waves. I go to a new ENT Tuesday. I am adding my miles slowly back in but have a fear when I am out on the road that I may have an episode. I have changed my whole lifestyle to try to keep this ugly part away. I do not drink, I only allow myself one cup of coffee, a low salt diet and I get my 8 hours of sleep. I have looked at numerous articles online and they all point to the same thing. It's something we have to live with and you never know when it will hit or pass. It's all a guessing game. Everyday I say, "This too shall pass" ~ Karin
ReplyDeleteJust wondering if anyone has tried grommets with steroids? I am on Betahistine but still having weekly attacks for the last 10 weeks. I have three young kids who I have to drive around and I have had one fallen attack with them in the car. It is very scary and need to do something about the attacks. My Specialist has recommended the grommets with steroids butjust wanted to hear from someone else who has had this before I go ahead with it.
ReplyDeleteGod bless Dr Kennedy for helping me with Meneiere's disease herbal remedy. With all my life i will forever be grateful to God Almighty for using Dr Kennedy to reach me when i thought it was all over. I'm Hayle Rodriguez, i was diagnosed of Meniere's disease 11 years ago just shortly after my 42nd birthday. I felt some forces on my right ear for just a day or two and it was over but It rolled back again after some weeks but this time it was more severe ear ringing and i get dizzy almost all time. My husband drove me to the ENT doctor who confirmed to me that i had Meniere's disease and only advised that i wait till more research is done for a possible cure. Just as the doctor said, my tinnitus and hearing loss permanently worsened on the affected ear because there wasn't a cure for it then. When i wasn't sure of what someone just said, i'll just smile and hoped it wasn't a question, my whole life became a mess as i couldn't relate with my own husband and children. I and my family searched and hoped for help until my friend told me about Dr Kennedy and how he helped cure her 4 months Pancreatic Cancer too. I contacted Dr Kennedy for help and explained my hearing loss to him through his email: drkennedy118@gmail.com . I must say I didn't actually believe her but she ask me to trust him and things would be OK. I did trusted him and after a couple of days he sent me medicines and dosage instructions. I started taking the herbal medicines as prescribed and my Meniere's disease got cured and disappeared just within 9 days. I still can't believe its gone. I say thank you, thank you, thank you so much Dr Kennedy. I also believe "In between Meniere's Disease is a thing called good life, that has to be lived and enjoyed" which is why i need everyone with Meniere's Disease to reach Dr Kennedy for help and herbal cures on dr.kennedy_woods@aol.com or drkennedy118@gmail.com and +1 (312) 973 1164
ReplyDeleteHello, I just turned 40 this year and was recently diagnosed with MD about a month ago. I started having ear ringing, debilitating bouts of vertigo, bloating and fatigue consistently (weekly) for a few months leading up to my diagnosis. I started reading a lot of information about ear ringing and vertigo on the internet (trying to only read reputable websites that I know of such as CDC and Mayo Clinic) and suspected that this is what I may have. After undergoing hearing tests, having a MRI to rule out a growth my inner ear, my ENT doctor was able to confirm MD. I have been on a low sodium diet and have been taking a diuretic now for about a month and a half and have felt much better and have not had any of the debilitating vertigo attacks, although sometimes I notice I may have a slight sensation or just a little dizziness, but that usually goes away with rest, although the fatigue seems to last for hours. The frustration that comes with this disease is indescribable! I have cried, been depressed and so angry because of the limitations that come a long with this disease. Just like you I continue to experience bouts of ear ringing, but I am learning to live with it. The worst ear ringing and vertigo episode I have ever had happened when I had to be hospitalized because of the vertigo. I don't think I have ever been so scared in all my life. One of the most frustrating things is also having to learn to be on a strict low sodium diet. I am so thankful that the low sodium diet seems to keep the vertigo away, but it's not easy and for people like us and thousands others, sometimes you just want to go through a drive through and eat a cheeseburger. I find that if I do cheat once and while and have something good to eat, I often suffer from either the ear ringing along with the fullness or some dizziness that is manageable at least.
ReplyDeleteAnyway, I guess it's nice to know that I am not alone and it is helpful to read all of your blogs and to see some things that work for all of you and help you cope!
Really appreciate you sharing your story, felt like I could have written it! Except my issue is my right ear, not left. I've had MD for 7 years and it comes in and out of remission. I've found taking a diauretic is extremely helpful with keeping inflammation and salt at bay. After an intense work out though, I find the pressure is more full in my ear. It worries me, but it's been 3 months since my last drop attack (which had me laid out for a full week). Just nice to know we're not alone, since many of my co-workers and friends and family can't really relate. Thanks again for sharing!
ReplyDeleteI was diagnosed with MD about 1 1/2 years ago. I have completed loss of hearing in my left ear, constant tinnitus and fullness. The vertigo has been severe with nausea and vomiting. I didn't know about the barometric pressure effecting MD but now that I do, it makes so much sense. I'm on Teva Betahistine (24 mg, twice daily. Also on a low salt diet and I drink lots of water. I've read that the attacks come in clusters (I recently had a number of severe attacks in a two week period), however I've only suffered on drop attack. Very scary. I walk for exercise. I used to ride my bike but now I'm a bit afraid of doing that, but I might try the gym after reading a number of the posts here. Nice to have such a forum as this.
ReplyDeleteHi, thanks for this awesome article, I’m Shania Kubisch 41 and from Manteca CA, USA. i was first diagnosed of Meniere’s disease in 2009 following an unexpected attack. My husband didn’t know what it was and i was taken to the hospital where we were told that i had meniere's disease. It lasted 2 years and went away. It came back in 2012 with a vengeance spinning 24/7, constantly feeling sick, tinnitus in my right ear, and loss of hearing. I was so devastated as i watched my carrier as a cashier crumble and communication with my family and friends lowered. After years of going to the ENT, and search for cure that proved abortive, my husband found out in a post on a health forum about some guru man (Prof Aafiya) who casts herbal healing spells to heal all kind of diseases. My family needed me and i needed a cure at all cost, i and my husband agreed to try the healing spell too and he complained my health state to the spell guru (prof Aafiya) on +2348108647815. He surely did help me and my husband cast a healing spell for Meniere's and i was completely healed of the disease just within 14 days. It’s been 2 years and 7 months since i had the healing spell and i have not had any symptoms of meniere’s disease. My hearing has been fully restored instantly and everything is back to normal again. If you have meniere's disease and experiencing it symptoms, you too may be able to get help from this Man (Prof Aafiya) via his email, prof.aafiyahealingspells@gmail.com .
ReplyDeleteI now believe in super-naturalistic healing very much because my own case has proved to me that there is nothing impossible. Once again thanks for this great article.